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"Like all mothers, Emily Rapp had ambitious plans for her first and only child, Ronan. He would be smart, loyal, physically fearless, and level-headed, but fun... But all of these plans changed when Ronan was diagnosed at nine months old with Tay-Sachs disease, a rare and always-fatal degenerative disorder. Ronan was not expected to live beyond the age of three; he would be permanently stalled at a developmental level of six months... Drawing on a...
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"An exquisitely written, expertly reported memoir and expose; of modern medicine that leads the way to more humane, less invasive end-of-life care based on the author's acclaimed New York Times Magazine piece. This is the story of one daughter's struggleto allow her parents the peaceful, natural deaths they wanted and to investigate the larger forces in medicine that stood in the way. When doctors refused to disable the pacemaker that caused her eighty-four-year-old...
Author
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When Molly McCloskey was a young girl, her brother Mike, 14 years her senior, started showing signs of paranoid schizophrenia. Through reading an astonishing archive of letters preserved by her mother and grandmother, and interviewing old friends of Mike's, she began to piece together a picture of his life.
Author
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When his son Rowan was diagnosed with autism, Rupert Isaacson was devastated, afraid he might never be able to communicate with his child. But when Isaacson, a lifelong horseman, rode their neighbor's horse with Rowan, Rowan improved immeasurably. He was struck with a crazy idea: why not take Rowan to Mongolia, the one place in the world where horses and shamanic healing intersected?
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